Note/Disclaimer: This is not medical advice or a medical healing claim. I just needed to acknowledge God’s hand in my life and the life of my dear friend. I am sharing this with her full permission.
“Did God send a message that was just for me? Did I see His hand in my life or the lives of my children? …I will find a way to preserve that memory for the day that I, and those that I love, will need to remember how much God loves us and how much we need Him. I testify that He loves us and blesses us, more than most of us have yet recognized.” Henry B. Eyring
In 1999 my husband and I wanted to enlarge our house to make room for a hoped-for fourth child, and hired a wonderful contractor to do the job. Unbeknownst to us, that same year, his wife, was beginning her battle with Lyme disease. Who would have predicted that many years later, her life and that of our child would become eternally connected.
Mine and My Son's Story:
After finding out that we would not be able to conceive our fourth child, we entered our church adoption system and in 2003 adopted a beautiful one-year-old boy who had some developmental delays and a seizure disorder. His delays increased the older he got; he eventually received an official diagnosis of autism but stayed very mild-mannered until the Fall of 2009 when he started head-butting me and punching himself really hard, leaving dark bruises on his face and ears. It became a very intense job to figure out ways to pad and protect him twenty-four hours a day, while working with doctors and therapists to get the self-injury to stop. It was common for him to try to hit himself every twenty minutes, and any sudden noise (like someone sneezing) or anything that was uncomfortable for him (like having his shirt taken off) could trigger an episode that took a long time to resolve. His doctors prescribed various medications that did not help and had concerning side effects. One of the only things that would calm him was vibration and motion, either through riding in the car or holding a vibrating toothbrush.
Finally, I was blessed to discover a neuroplasticity program in my town which opened my eyes to the idea that my son could develop and have a better life. The director of the program looked me in the eye and promised me this, and opened me to a world of dietary changes and other helps that really got us pointed in the right direction. When that program ended, we had gotten a glimpse of the possibilities but the self-injury was still really bad. In November of 2011 I took him to a child psychiatrist who was so afraid of my son and his behavior that he told me I should take him to the ER right then and have him admitted. I promised that my son would calm down as soon as we got back into the car and insisted on having him help me come up with a medication plan which we yelled to each other over my son's yells.
While I was at this very low point, and after many prayers, fasts, priesthood blessings, and visits to our temple, I remembered I had a friend with two autistic sons who was doing all kinds of stuff to get them better from autism. I had been aware of her, but the experts in my life at that time had told me that things like diets were hard and didn’t seem to work. I noticed that she had posted something on Facebook about improvements her kids had made. I messaged her and asked who was her autism-recovery doctor, and she replied that she used a homeopath. She said, “She might have you do stuff that seems weird, but trust her. She’s a genius.”
I called the homeopath on the phone and this was the first time I felt completely understood! She had two children with autism diagnoses, had completely recovered one and significantly improved the other. Her son had been so violent as a toddler that she had been advised to institutionalize him.
I set up an appointment to bring my son to see her at her home office, and was not prepared to meet this young, beautiful mom who told me all kinds of crazy things! She said that Lyme disease is often present in autism, that many people have it without knowing it, that she had had it herself, and that you can get it from mosquito bites and other things, not just from tick bites. She gave my son homeopathic drops to take along with nutritional supplements, and made suggestions for his diet.
I did what she recommended and took my son to see her every six weeks. I made a huge wall calendar showing several months at the same time and decided to write in green marker any time something good happened. Weeks went by with nothing to write. Then one day my son went three hours without any self-injury attempts! So I gratefully marked that on the calendar. At first, the calendar was mostly white without any green, but as the weeks went by, I was able to add more and more good things so that by April 2012, the calendar was packed with green notes!
Mine and My Friend's Story:
In June of 2008 I had the unexpected blessing of finding out that the our dear contractor's family had not only moved to our area, they would now be attending church in the same ward (parish) as we were! Over the years I had continued to be grateful for him and his work on our house, and heard through the grapevine that his wife suffered from something called Lyme disease. When out hiking occasionally I had seen the warnings about ticks and a bull’s eye rash but I had never known anyone with the disease. When I met her the first Sunday at church, I was surprised because she didn’t look sick—she looked glamorous and gorgeous! We felt an instant connection because her husband had remodeled our house. They invited us over for dinner and as we were eating, I just came right out and said, “Tell me about this Lyme disease thing!” She and her husband shared their story of the ten years or so that had passed since he had worked on our house. At the current time she was doing relatively well, crediting a couple of years of IV antibiotics and many other treatments. It had taken years to figure out what was really wrong with her, at first thinking it was MS, and they had spent hundreds of thousands of dollars on Lyme-literate doctors and treatments. They had lost a baby to Lyme. All five of their children inherited Lyme from her before she knew she had it and could pass it on to her children. With hired help, family, friends, and her husband's flexible job, they had managed to raise their beautiful family amidst my friend's illness and much time confined to bed.
Every time I saw her, she looked great, but sometimes she would be shaky or wavy. One Sunday at church she was teaching the lesson to our women’s group, and her whole body was doing the wave in a really big way, the entire time. She kept on teaching that beautiful lesson. At a women’s activity one evening, I noticed that her voice was hoarse and asked her if she was coming down with a cold. “No,” she said, “Sometimes my throat closes up for no reason and there is nothing I can do about it.” I was sobered by the reality that she could just have her throat totally close up and she could die. I thought how crazy it must be to live like this, but she didn’t act dramatic about it.
When her elderly mother passed away, my friend invited me over to try on some clothes that her mom had left that she thought might look good on me. I will always remember that huge pile of beautiful clothes in the her family room, with my friend lying on the couch next to it, and her husband feeding her breakfast bite by bite. She would tell me to try something on, and with each outfit she would give me style pointers and tell me how beautiful I looked! I went home with an absolute treasure trove and felt so blessed. For weeks after that, I would email photos to her of each new outfit I was wearing, and from her sickbed she would email me comments and advice.
My friend seemed pretty functional but she had days each week where she could barely move. Because I had experience being in the “adversity club” with my son, I was really interested in her and her illness and was not afraid of it like some people can be. I asked detailed questions and looked for ways that I could help. I pressed her pretty hard to let me help with anything—cooking, cleaning, etc. but she would not budge and would not let me do a thing. Finally she said, “Well, there is something you can do for me. There is a religion class I like to attend on Monday mornings that’s 45 minutes away and sometimes I have to miss it because I’m too sick to drive. Would you like to go?” Now, at that time in my life, the LAST thing I wanted to do was go to a religion class, especially on a Monday morning. But because I recognized that this was something that would help her, I agreed to go.
This was such a great decision! I promised to always drive so that she never needed to worry about how she was feeling that morning. This also gave her husband a few hours every week where he knew that someone else was watching over his wife. It was on these car drives that we became very good friends and she taught me from her wealth of wisdom and spiritual education she had received during her years in bed, where she had drawn comfort and strength from studying the scriptures and other church books. The class was wonderful, too, really broadening my mind and enriching my soul.
Our family’s lives became intertwined as well—one of my daughters shares a birthday with her third son and they had a birthday party together. Another son helped me with my son and his neuroplasticity exercises. She and her family were always so loving and compassionate towards my son.
After I started working with the homeopath, we added another friend to the Monday religion class carpool and I talked a lot about what I was doing with my son. I knew for sure that what we were doing was helping him and if I know something will help someone else, I am not shy about sharing it. My friend's Lyme symptoms were worsening and it became pretty common for her to barely be able to get ready and into the car on a Monday morning, but she pushed herself and rarely missed a class. All of her children have experienced Lyme to varying degrees, but when her third son turned 17, his Lyme symptoms took a tragic turn. In addition to suffering pain and fatigue, he started to have seizures. You would look at him sitting in church and he would be shaking all over. His parents took him to neurologists and did EEGs, but no drugs could touch these Lyme-induced seizures. When I would go to my friend's house, it was not unusual to see her son lying on the couch, too sick to go to school. Often my friend and her son would suffer their worst symptoms on the same days. It just broke my heart to see this handsome young man so sick with an "incurable disease" and wonder what kind of future he would have. It was so hard to look at him at church, shaking in front of everyone (how must that have been for a teenage boy?!) and not be able to help him. Since my son has seizures, too, I related.
My friend also started to have seizures which were becoming more and more frequent. One afternoon I was on the phone with her and she casually mentioned that she had passed out in the shower the day before and didn’t know how long she had been there. No one had been home. I encouraged her to get a shower chair and again felt so worried about the seriousness of her situation. One day as we were riding home from our religion class, with her in the front seat and our other friend in the back seat, I could tell that she was even more tired and uncomfortable than usual. She reclined her seat and closed her eyes, and when we were almost to her house, she said, “I think I’m going to have a seizure.” I parked in front of her house and asked what she wanted us to do, and she said we should try to get her into the house. We opened the car door and helped her stand up and she said, “I’m not going to make it,” and then she started to seize and went down and the other gal and I kind of caught her and helped her get to the grass. She proceeded to have a grand mal seizure on the grass in front of her house. As she was going down, I wanted to help her but she asked me to stay out of the way as she was worried about me getting hurt from her thrashing body. (Her husband actually called me that night to ask if I was O.K. because he was worried about me having gotten hurt from helping her.) I think the seizure lasted between one and three minutes and then we asked her what she wanted us to do. She asked us to help her get into the house and we asked if she wanted to go to the couch or her bed but she said to just leave her there on the living room carpet. She was willing to let us get her a pillow and a blanket. We offered to stay, we wanted to stay, and she insisted on us leaving, saying, “I’m going to be doing this all day.” I felt bad about that but felt I had to honor her word, so I called her neighbor who was really generous about checking on her, and she went over.
She had SO many seizures at this time! Many, many seizures in one day. If her husband came up behind her in the kitchen and startled her, she would often drop to the floor and have a seizure. She could not go to movies or any place where there was loud music. Her husband stayed home from work many days because he was worried about leaving her alone. The vibrations from the organ music at church were hard for her. Her neurological system was shot.
My Friend's Husband, Our Bishop:
In June of 2012 our congregation found out that we were getting a new Bishop. In the Mormon religion, our local pastor is called a Bishop and it is something he does in addition to his paid career. It is absolutely vital to have a healthy, functioning wife if you are going to serve as Bishop. As we all like to do, in our family we speculated about who the new Bishop would be. I think many people thought that my friend's husband *would* have been the most likely candidate if she wasn’t so sick. I couldn’t imagine him being called to be Bishop under these circumstances. But lo and behold, he was called to be Bishop, and he accepted! This is one of the most impressive acts of faith I have ever witnessed and is so characteristic of this family. My friend and her son were getting worse and worse yet they acted in faith to do what the Lord asked them to do. Their family and extended family were consistently praying, attending the temple, and petitioning God for healing.
Help from the Homeopath:
As my friend and I would talk in the car every Monday, I would share what the homeopath was recommending for my son, and after a while, after every neurologist and Lyme-literate doctor had thrown up their hands and had nothing that stopped the seizures, she decided to take her son to see the homeopath. My friend's budget was maxed out from having spent hundreds of thousands of dollars over the past twelve years on every treatment they could find, so she spent her budget on her son, not on herself. Even though she was incredibly sick, her focus was on getting her son better. (He improved, graduated from high school, went away to college, and is currently serving a full-time church mission in Ohio. Even though his schedule as a missionary is grueling and the temperature extremes in Ohio are extra challenging for a person with Lyme, he is thriving.)
While all these challenges were going on with my friend and her son, I was in the thick of things with my son. I was spending at least $600/month on office visits and homeopathics imported from Europe (none of this covered by insurance), not to mention the cost of feeding my son an all-organic whole-food diet. Although I could see he was improving under the homeopath's care, he still made a ton of self-injury attempts every day and my hands were full. Still, the homeopath had taught me month after month that she did not believe in incurable diseases and that you can get better from things. I sat in her office after we had talked about my son, and I said, “I really want to help my friend with Lyme. Isn’t there anything you can recommend that I can do for her?” She looked me in the eye and said, “No.” I don’t believe that she didn’t think there was anything that *could* be done for my friend. I think she could see that I was maxed out with my son and she didn’t want to participate in encouraging me to add anything else to my plate. Even though she had been through a lot with her own children and others she was helping, during one of our visits when my son had a really bad hitting episode, she told me later she went home and cried. She has the most compassionate heart and wanted more than anything for him not to suffer like this.
Essential Oils Join the Protocol:
I think it was in August of 2012, after one of our appointments, our homeopath walked me out to the car and told me she had just had an intriguing experience in Utah where she had run into health coach at the dentist’s office. They ended up talking for two hours, and this person hired our homeopath on the spot to help her do some wellness education, including essential oils. Our homeopath had never had good results with essential oils in the past and had not used them in her practice. However, as she tried the products from this company and became impressed with her results, she started introducing them into my son's protocol, at the beginning of November 2012. I had seen some videos about frankincense essential oil helping with seizures, which are one of my son’s issues, and I noticed that frankincense and other oils were helping my son to become calmer so I started learning more about them as well.
In November of 2012 I was getting really, really desperately worried about my friend. She was actually missing church. This meant that she was REALLY sick. Even if she had been bedridden for the whole week, she would usually manage to make it to church. At one point, she had ONE good day in a whole week and came over to my house so I could give her some vitamins to send to her missionary son. I offered her a pea pod from the vine by my front walkway and she said, “Oh, I can just TASTE the nutrition!” That gave me an idea. Maybe we could get people from church to give her extra organic produce from their yards. Maybe we could get people to take turns coming over and sitting with her so her husband could go to work. It was absolutely unacceptable to me to see my dear friend literally dying of seizures, while her husband was doing his best to care for her, support his family, and lead our congregation.
I was praying before but I really started praying even more earnestly in this dire situation. None of the Lyme-literate doctors had anything else to try. I drove my friend to Orange County to see a new specialist and I sat next to her while the doctor reviewed everything she had already tried. Then he said, “I have to be honest with you. I don’t think this treatment we offer can help you.” (Bless him for being honest!) On the ride home she talked on the phone to another specialist who was difficult to get an appointment with and didn’t seem to have anything new. But our homeopath had taught me that your body could get better from “incurable” diseases. She would tell me every single visit, “Your son is going to get better.” And I ingrained this belief into my own mind. One day as I was driving and praying for my friend, the clear idea came into my head, “Give her some of your son's frankincense.”
I knew that this was an answer to my prayer but I also knew that my friend had been offered lots of “cures” over the past twelve years. I put some frankincense into a plain bottle so she couldn’t tell what it was, and I brought it to her house, where she was sitting at the kitchen table with her husband and some of our wonderful missionaries.
I told her that I had been praying and this was the answer I had received. I hoped she wouldn’t think I was too crazy. I handed her the bottle and before she opened the lid (she told me later) she just knew, “This is going to help me.” She opened the lid and smelled it, and said, “I don’t know what this is, but I want to drink it and bathe in it!” She absolutely adored it from the start. I told her she could take it internally (this is only true for certain brands of frankincense) and rub it on her head, neck, spine, and/or feet. She used what was in the bottle for about a week and believed that she was improving. When she felt a seizure start to come on, she could sometimes head it off by smelling from the bottle. When she ran out of this sample and gave me her report, I told her, “If you promise to use it and give it a good try, I will give you a whole bottle for Christmas.” This was very significant as she is so close to the Savior, brought especially close through her Lyme journey, and had brought me much closer to Him through her teachings to me. This was special to me as well because December was “free frankincense month” for this company and I felt good about giving her my free bottle for Christmas. She used it faithfully all month and by the end of the month, she was SURE that this was turning things around.
Her last seizure was Thanksgiving of 2012, very shortly after she started using frankincense.
As I am writing this on Christmas Eve of 2014, it has been more than two years since my friend has had a seizure.
My friend continued to use frankincense every day, combined with various other oils as she continued to heal, and it has been amazing to watch her come back to life. In her first year of healing I was awe-struck as I saw her do so many things she could never do before, such as:
--Participate in a 5K with flashing lights and loud music.
--Go to the beach.
--Take a huge role in planning, flowers, receptions, etc. for two sons’ weddings.
--RUN across a parking lot. (On bad days she used to hobble if she could walk at all.)
--Be a massively busy and supportive volleyball mom.
--Work tirelessly as a Bishop’s wife and in several other demanding church assignments.
In 2014 I started to really miss my friend. She was always running around and doing something! I used to be able to count on her being confined to bed, easy to reach and talk to. I was disappointed that now I had to wait for her get around to checking Facebook or emailing me. She was too busy living life. And then I found out she was JAZZERCISING every day! That means loud music and full physical exertion! I am not a fan of exercise or loud music but I started Jazzercising with her just so I could spend a little more time with her. Every time I see her, living such a full, active life, I am in awe of God’s plan and the way He blesses our lives and allows us to participate in blessing each other.
Note: Since November of 2012, my friend and I have discovered many others with Lyme disease who are improving with the help of essential oils. Although I thought she was crazy at the time, our homeopath was right: There are many, many people out there with Lyme disease. I am sharing this to acknowledge God’s hand in my friend's healing and that of my son and so many others, and to share the truth that healing can happen!
Note/Disclaimer: This is not medical advice or a medical claim but a personal story acknowledging the hand of God in my life.