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Monday, September 23, 2013

May 1, 2012: The "Before" Picture

Note: I wrote this on May 1, 2012, then took it down because I felt it was too raw and awful to keep on the blog. I uncovered it as part of a church assignment to look for a time in my life when I was at a very low point, and knew that the Savior was there. He showed up in the form of my friend Val the next morning (see post from May 2, 2012). Since I wrote this, my son has responded to his naturopathic protocols and is doing amazingly well!

Weather: Gray

I really, really need this to be a "before" picture. I need to know that in a year, mornings like this will be a distant memory. There is very good evidence that things will get better. We know he has leaky gut and several other medical issues, which we are treating him for and we are seeing steady improvements in language and overall happiness. But mornings like this are not a thing of the past yet.

All I know is that I am sitting at the computer bawling my eyes out and he is on the bus, with most of the blood washed off his face, blood all over his shirt and hands but it's a red shirt anyway and I wasn't about to try to change his shirt while he was using every limb and ounce of energy to beat his face into a pulp.

There was poo all over his bed when I got him up this morning so I got him to the shower which he smilingly complied with and only started head-flipping as he was getting out. He calmed down enough to eat and take his most important meds but then his sister, who is usually out the door before he gets up, left late and as soon as he heard the front door squeak, he bounced up and ran to the door, hoping for a ride. Of course it was way too early for the bus so he completely flipped out when I brought him back inside. 

Since his room was covered in poo I had to wrangle him to his college sister's room, onto her bed which was piled with clean laundry. He was punching his face and kicking his legs like crazy. In a desperate attempt to protect his face and eyes from himself, I managed to use a long sock to tie his arms together and a pair of pajamas to tie his legs together but that kept coming undone and he could still hit his face with his arms so I wrapped a towel around his arms.

Then I went to his room to collapse on the floor in tears while I cleaned up poo so I could bring him in there, which is a much safer place for him and has a video camera monitor. In the two minutes he was alone, he got to the floor, got the towel off, and had completely covered his face in blood. (It would have made a great "before" photo except that it was more important to stop the bleeding.....)

I cleaned his face as best I could with the towel, then got him to his feet and back to the kitchen where I re-wrapped his arms with the neoprene tennis wrap that works a lot better and he likes. I sat at the table with his feet on my lap, waiting for the bus, and he still hit his head on the back of the padded chair, but slowly calmed down and I cleaned his face as best I could with a napkin dipped in the expensive special water that he hadn't drunk yet. I saw that he had also cut the inside of his mouth.

I thought about how it is not ideal to put your bleeding kid on the bus to school but this whole situation is less than ideal, don't you think? He has given himself bloody noses on the bus before which is why I have repeatedly requested a rider.

I thought about the book I just finished, Carly's Voice, and how in spite of Carly's miraculous development of learning to type to communicate, and a full-time staff during the day, they still had to put her in a group home for the weekends just so they could get a break. I thought about how in spite of how absolutely extraordinary this family is, Carly was molested in that group home. I thought about why I am sticking with the treatments our autism-recovery specialist is giving him, even though everything is a lot of work: Because what choice do I have? Send him back to his birthparents? Stick him in a group home, where there is a 100% chance he will be molested?

Where was my husband? He is out of town on business, but is usually not available at this time anyway. I suppose that it is time, as we have discussed before, to hire someone to come and help get him ready in the mornings. That means spending money, finding someone, and doing paperwork. Who would possibly be willing and available to come over from 7:00-8:00 every weekday morning?

Oh yes, I actually have a friend who offered. She is paralyzed from the knees down, her 18-year-old son almost died a few weeks ago from Addison's disease, she volunteers to drive a girl who lives on the other side of town, to early morning seminary 10 days every month. With everything on her plate, she WOULD do it in a heartbeat. Just thinking about her selfless offer starts the tears flowing again.

Autism = Insanity (for me)

He is on the bus. I have resources. I needed a good cry anyway.

Sunday, February 3, 2013

An Answer to Prayer for My Son's Sensory Processing Disorder

From an email to my son's teachers: This is kind of personal and spiritual but since my whole essential oil journey has been a spiritual one, I'm not going to hold back. This weekend, as part of my religious monthly fast, I fasted and prayed that I would be able to find answers for how to help my autistic son with his self-injury that has been going on for about three years. He hits his head and kicks his legs really hard against each other and is only calmed by vibration, riding in the car, or being in the water. Since I *always* fast about this issue, this time I decided to put the focus less on myself ("why can't I find a solution!") and more on my son ("please help me know how to help him relieve his pain.")

So last night he was sitting at the table eating dinner, and his legs were on my lap and he just kept kicking them and couldn't hold them still. The idea popped into my head to try an essential oil blend on him, and since the skin on his legs was looking really dry, I thought, why not massage the oil into his legs? So that is what I did, and kept massaging his legs for a while, and he got so calm! His legs were still, and the sweetest smile crept onto his face! It was one of those "instant" essential oil responses that I'd heard about in classes but hadn't seen yet with Sam. (Note that I have already tried a few other blends but hadn't noticed anything.) Then he jumped out of his chair, went to his room and laid down and kept the same smile on his face. Daddy and his sister went and read to him and he was calm and happy for an extra long time.

This morning when he was agitated I wanted to try it again but didn't have time to massage his legs much, and didn't see much of a reaction.

But this afternoon when he was kicking again, I sat him in a chair and massaged the oil into his legs again, and also did some joint compressions, and got the same reaction as I did last night. A truly angelic smile slowly crept onto his face and stayed there. I want to give credit to his occupational therapist who did some massage on him last time she was here, and I want to ask her to train me. I have massaged his legs before, and I know that it was the combination of that plus the essential oil blend that was getting into his system through scent as well as through his skin.

I am so grateful that I was given the idea of something I could do to relieve my son's pain.