I just checked my notes and his most recent SIB was April 24! That means no self-injurious behavior at school or at home for a MONTH!!!!!!! The last time this happened was before it all started when he was about nine years old!!
Monday, May 23, 2016
Sunday, May 8, 2016
Miraculous Graduation and Wedding Weeks
One year ago we made a road trip to Utah in which our son did great in the car but had a couple of intense tantrums in the hotel and while visiting relatives. We took the same road trip a couple of weeks ago and he made many transitions in and out of the car, visited relatives, attended a graduation ceremony, and stayed in a hotel, all without a single tantrum and most of the time with a smile on his face. He was incredibly easy-going and resilient. I don't think we've ever been on a tantrum-free trip with him. Yippee!
Then a week later he had an AMAZING day on my daughter's wedding day! Just as we couldn't have come up with a better son-in-law if we had custom-designed him ourselves, my son's behavior and happiness on April 29 were beyond my wildest expectations. He handled a house full of girls getting their hair and makeup done. Then he got dressed in fancy clothes. Then he had to get out of his chair a bunch of times and stand up and hold still at the temple for family photos and seemed to actually enjoy it! He KNEW he looked awesome in his bowtie and fancy clothes! And then he absolutely thrived and rocked out at the reception, dancing vigorously and not once being bothered by all the people or the music! What a wonderful day!
This weekend he had two seizures 11 hours apart. Yes it was upsetting and concerning. But Heavenly Father timed them on the weekend that would be most convenient and least distressing. Last weekend was my daughter's wedding. The weekend before was our road trip to graduation in Utah. And next weekend I will be flying to Utah for the Utah wedding reception. God is so very good to us!
Then a week later he had an AMAZING day on my daughter's wedding day! Just as we couldn't have come up with a better son-in-law if we had custom-designed him ourselves, my son's behavior and happiness on April 29 were beyond my wildest expectations. He handled a house full of girls getting their hair and makeup done. Then he got dressed in fancy clothes. Then he had to get out of his chair a bunch of times and stand up and hold still at the temple for family photos and seemed to actually enjoy it! He KNEW he looked awesome in his bowtie and fancy clothes! And then he absolutely thrived and rocked out at the reception, dancing vigorously and not once being bothered by all the people or the music! What a wonderful day!
This weekend he had two seizures 11 hours apart. Yes it was upsetting and concerning. But Heavenly Father timed them on the weekend that would be most convenient and least distressing. Last weekend was my daughter's wedding. The weekend before was our road trip to graduation in Utah. And next weekend I will be flying to Utah for the Utah wedding reception. God is so very good to us!
Birthday Rap from My Little Rapper
I miss my big kids so much and when they record something for me I want to listen over and over. My youngest daughter wrote and recorded this for me for my last birthday and I am posting it here so I can find it again.
https://rapchat.me/share-rap.html?rapid=651B22EB-035E-40CB-B148-DC1FF43C60CA
Sent from my iPhone
https://rapchat.me/share-rap.html?rapid=651B22EB-035E-40CB-B148-DC1FF43C60CA
Sent from my iPhone
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